The road less travelled:
Finding a path to diagnosis in rare neurotransmitter disorders


COOKIE STATEMENT

Last updated: February 2020
What Are Cookies?
When you visit our website, it may store or retrieve information in your browser, mostly in the form of cookies. Cookies are small text files that are transferred to your computer's hard disk by a website. This information might be about you, your preferences or your device and is typically used to make the site work as you expect it. The information does not usually directly identify you, but it can give you a more personalized web experience.

What Types of Cookies Do We Use?
There are two broad categories of cookies: First party cookies, served directly by us to your device and third-party cookies, which are served by a third party e.g. Google, Facebook, Instagram, Twitter, LinkedIn.

Cookies can remain on your computer or mobile device for different periods of time. Some cookies are “session cookies”, meaning that they exist only while your browser is open. These are deleted automatically once you close your browser. Other cookies are “permanent cookies”, meaning that they survive after your browser is closed. They can be used by the website to recognize your computer when you open your browser and browse the Internet again.

This website uses the cookies that perform three functions, namely:

  • Strictly Necessary Cookies;
  • Functionality Cookies; and
  • Advertising/Targeting Cookies.

1. Strictly Necessary Cookies - These cookies are essential in order to enable you to navigate around the website and use its features, such as accessing secure areas of the website. These cookies don’t gather information about you that could be used for marketing or remembering where you have been on the internet.  This category of cookies cannot be disabled.
We use the following strictly necessary cookies:

Cookie name

Cookie Type

Source

Expiry

Purpose

PHPSESSID

Strictly Necessary Cookies

Hosting

Session

Cookie generated by applications based on the PHP language. This is a general purpose identifier used to maintain user session variables.
It is normally a random generated number, how it is used can be specific to the site, but a good example is maintaining a logged-in status for a user between pages.

CookieConsent

Strictly Necessary Cookies

cookiebot.com

Year

Stores the user's cookie consent state for the current domain

2. Functionality cookies - These cookies allow our site to remember the choices you make (such as your username, language, preferences, or region) to provide a more personalized online experience. These cookies collect information that may be anonymous but may also include personal information that you have disclosed. If you do not accept these cookies, the site's performance and functionality may be affected, and access to content on the site may be restricted.

We use the following functionality cookies:

Cookie name

Cookie Type

Source

Expiry

Purpose

MC_USER_INFO

Functionality cookies

.mailchimp.com

Month

A random unique number or string of letters and numbers to identify the browser, the times and dates our visitors interact with the site.

OptanonAlertBoxClosed

Functionality cookies

.mailchimp.com

Year

This cookie is set after visitors have seen a cookie information notice and in some cases only when they actively close the notice down.
It enables the website not to show the message more than once to a user.
The cookie has a one year lifespan and contains no personal information.

OptanonConsent

Functionality cookies

.mailchimp.com

Year

This cookie stores information about the categories of cookies the site uses and whether visitors
have given or withdrawn consent for the use of each category.
This enables us to prevent cookies in each category from being set in the visitor’s browser, when consent is not given.
The cookie has a normal lifespan of one year and it contains no information that can identify the site visitor.

_derived_epik

Functionality cookies

.mailchimp.com

Day

This cookie is associated with the MailChimp sign up form that will pop-up on the homepage.
Will store the value ‘yes’ to prevent the popup being displayed again.

_gcl_au

Functionality cookies

.mailchimp.com

3 Months

Used by Google AdSense for experimenting with advertisement efficiency across websites using their services.

_gid

Functionality cookies

.mailchimp.com

Day

Registers a unique ID that is used to generate statistical data on how the visitor uses the website.

_mcga

Functionality cookies

.mailchimp.com

Session

Strictly necessary to provide you with services available through our Mailchimp Sites and to use some of its features, such as access to secure areas.

_mcid

Functionality cookies

.mailchimp.com

Year

Contains unique MailChimp ID number

nmstat

Functionality cookies

.mailchimp.com

2 Years

It is used to collect statistics about site usage such as when the visitor last visited the site.

optimizelyEndUserId

Functionality cookies

.mailchimp.com

6 Months

Stores a visitor's unique Optimizely identifier. It's a combination of a timestamp and random number.
No other information about you or your visitors is stored inside.

3. Advertising/Targeting cookies - are used to deliver advertisements more relevant to you but can also limit the number of times you see an advertisement and be used to chart the effectiveness of an ad campaign by tracking users’ clicks. They are usually placed by third-party advertising networks with a website operator’s permission but can be also placed by the operator. These cookies can remember that you have visited a website, and this information can be shared with other organizations, including other advertisers. Without these cookies, online advertisements you encounter will be less relevant to you and your interests.
We use the following advertising cookies:

Cookie name

Cookie Type

Source

Expiry

Purpose

act

Advertising/Targeting cookies

.facebook.com

Session

This cookie is used to distinguish between two sessions for the same user, created at different times.

c_user

Advertising/Targeting cookies

.facebook.com

3 Months

The c_user cookie contains the user ID of the currently logged in user.

datr

Advertising/Targeting cookies

.facebook.com

2 Years

The purpose of the datr cookie is to identify the web browser being used to connect to Facebook independent of the logged in user.
This cookie plays a key role in Facebook’s security and site integrity features.

dpr

Advertising/Targeting cookies

.facebook.com

1 Week

Used for the purpose of the advertisement recommendation

fr

Advertising/Targeting cookies

.facebook.com

3 Months

Used for advertising and contains the encrypted Facebook user ID and the browser ID

presence

Advertising/Targeting cookies

.facebook.com

Session

The presence cookie is used to contain the user’s chat state.

sb

Advertising/Targeting cookies

.facebook.com

3 Months

Used by Facebook to improve friend suggestions

spin

Advertising/Targeting cookies

.facebook.com

1 Day

Used for reporting on social campaigns

wd

Advertising/Targeting cookies

.facebook.com

1 Week

This cookie stores the browser window dimensions and is used by Facebook to optimise the rendering of the page.

xs

Advertising/Targeting cookies

.facebook.com

3 Months

This cookie contains multiple pieces of information, separated by colon (colon is encoded to the value %3A for transmission).
The first value is an up to two-digit number representing the session number.
The second portion of the value is a session secret.
The third, optional component is a ‘secure’ flag for if the user has enabled the secure browsing feature.

_fbp

Advertising/Targeting cookies

.facebook.com

3 Months

Used by Facebook to deliver a series of advertisement products such as real time
bidding from third party advertisers.

_ga

Advertising/Targeting cookies

.mailchimp.com

Year

This cookie distinguishes users from each other.

_gat

Advertising/Targeting cookies

.googletagmanager.com

Day

Used by Google Analytics to throttle request rate

collect

Advertising/Targeting cookies

.google-analytics.com

Session

Used to send data to Google Analytics about the visitor's device and behavior. Tracks the visitor across devices and marketing channels.

tr

Advertising/Targeting cookies

.facebook.com

Session

Used by Facebook to deliver a series of advertisement products such as real time bidding from third party advertisers.

 

Google Analytics
This website uses Google Analytics, a web analytics service provided by Google, Inc. (“Google”). Google Analytics uses “cookies”, which are text files placed on your computer, to help the website analyse how users use the site. The information generated by the cookie about your use of the website (including your IP address) will be transmitted to and stored by Google on servers in the United States. Google will use this information for the purpose of evaluating your use of the website, compiling reports on website activity for website operators and providing other services relating to website activity and internet usage. Google may also transfer this information to third parties where required to do so by law, or where such third parties process the information on Google’s behalf. Google will not associate your IP address with any other data held by Google. You may refuse the use of cookies by selecting the appropriate settings on your browser. However, please note that if you do this you may not be able to use the full functionality of this website. By using this website, you consent to the processing of data about you by Google in the manner and for the purposes set out above.

For more details on how Google processes your data please visit Google’s Privacy Policy available at policies.google.com/privacy?hl=en

To opt out of being tracked by Google Analytics across all websites visit tools.google.com/dlpage/gaoptout. Compatible with Chrome, Internet Explorer 8–11, Firefox and Opera.

How Do We Use Information We Collect from Cookies?
We use software tools such as Web server logs to gather information about our website users’ browsing activities, in order to constantly improve our website and better serve our customers. This information assists us in designing and arranging our Web pages in the most user-friendly manner and to continually improve our website to better meet the needs of our customers and prospective customers.

Web server logs allow us to count how many people visit our website and evaluate our website’s visitor capacity. We do not use these technologies to capture your individual email address or any personally identifying information about you although they do permit us to send focused online banner advertisements or other such responses to you.

How to control or delete cookies
Because we respect your right to privacy, you can choose not to allow some types of cookies. You have the ability to accept or decline cookies by modifying the cookies settings in your browser. You can also delete cookies that have already been set. However, note that blocking some types of cookies may impact your experience with the site and the services we are able to offer. If you have accepted our use of some or all cookies, the above information relates to cookies used on this website only. Please note that any consent to accept or to decline cookies is limited to this website only and not to other third-party owned websites or any other webpages, which may be hyperlinked to this website. For more information on cookies used by those websites, please refer to the specific privacy notice or cookie policy on those websites.

If you wish to restrict or block web browser cookies which are set on your device, then you can do this through your browser settings; the Help function within your browser should tell you how or you can click on one of the links below to go directly to the user manual for your browser:

Alternatively, you may wish to visit www.aboutcookies.org, www.allaboutcookies.org or https://cookiepedia.co.uk/ which contain general information about cookies and comprehensive information on how to modify the cookie settings on a wide variety of browsers and how to delete cookies from your computer. For information on how to do this on the browser of your mobile phone or tablet you will need to refer to your device manual.